COTA CHILDRENS ORGAN TRANSPLANT ASSOCIATION INC

Rating: 3 stars   2 reviews

Issues: Health, Human Services, Philanthropy

Location: 2501 West COTA Drive Bloomington IN 47403 USA

Mission: The Children's Organ Transplant Association helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support.
Results: COTA was founded in 1986. Since then, COTA has raised more than $63,000,000 and helped more than 1700 families. 100% of funds raised in honor of COTA patients are used for transplant-related expenses.
Target demographics: COTA works with children and young adults who need or have had a life-saving transplant and are under the age of 22. COTA can work with transplant patients needing a transplant due to Cystic Fibrosis or other single cell genetic disorders at any age.
Direct beneficiaries per year: COTA families come from every area of the country and represent every ethnic, social and racial background. COTA has worked with more than 1700 families.
Geographic areas served: Nationwide
Programs: The Children's Organ Transplant Association's priority is to ensure that no child or young adult is excluded from a transplant, or from a transplant waiting list, due to lack of funds. The Children's Organ Transplant Association does not charge a fee for services so 100% of the money raised for patients goes for transplant-related expenses.

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Community Reviews

Rating: 5 stars  

Wow, I am really surprised by the other review. We have had a wonderful experience with COTA. I never expected them to raise the money for us. They are only supposed to be there as a support for YOUR fundraising activities. We have found it extremely helpful to have the backing of such a large 501(c)3. We have done several large fundraisers over a year period and have been able to raise almost 100K. When doing a large event and seeking corporate sponsorships, it is absolutely necessary to have a 501(c)3 of some type. I have known people who tried to fundraise without the backing of a large organization and they had a harder time raising large amounts of money. We have found COTA to be extremely helpful with reimbursements. They are confined by IRS regulations, but that would be true of any organization of this type. You cannot expect to take funds and use them for non-medical reasons. My son has a very complicated condition and his care is often "out of the box." We have found COTA to be very helpful with helping us get things approved when they are medically related but maybe not the typical reimbursement. We usually receive the reimbursement checks within a week. You can also submit medical bills to them and they will pay them directly. I cannot tell you how much it has helped to have the extra funds. It has made our life manageable through a very difficult time. We have been reimbursed for over $40,000 in medical expenses in just one year so that should tell you that it is certainly not impossible to get reimbursements. It upsets me that someone would write a negative review when it sounds like they did not have a very good understanding for what COTA actually does.

If I had to make changes to this organization, I would...

Make the website (the one they create for your child) better and easier to modify.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 1 stars  

I would not recommend COTA to anyone seeking to fundraise for their childs transplant. Basically if you are in a terrible financial situation - don't expect them to help. Even though the funds they hold are the funds that were raised for YOUR child specifically by fundraising events. They don't deem the funds as yours. They deem them as THEIRS to do with whatever they please. Good luck getting reimbursed for anything and if you do enjoy the 3 week long wait.

If I had to make changes to this organization, I would...

Hire individuals who actually want to help families with severely ill children have one less stress (the financial burden) so that they can enjoy their time with their children more - stress free.

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

Unlikely

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2013

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Review from Guidestar