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Phone: 800.753.2357
302 West Main Street
#100

Avon
Connecticut 06001
USA
Website
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Someone who had 3 hours of volunteer time could: Spread the word about CdLS and save a child's life in the process, fundraise to help the Foundation provide assistance to families or provide education to healthcare professionals.

Geographic areas served: United States

Programs: Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country

Mission:
Reaching Out, Providing Help and Giving Hope.


Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.

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35 Reviews
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Average rating:
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09/20/14
The CdLS Foundation attempts to reach out and support all families who are affected by this syndrome. They provide sources, networking, and personal attention to ensure that all has been done that can possibly be done with the financial reserves and man power they have to offer. From the tip of ... more »
09/19/14
The Cornelia de Lange Syndrome (CdLS) Foundation is an amazing foundation full of people who truly care and are making a difference everyday! My family was connected to the CdLS Foundation upon the birth of our first child, who was diagnosed with CdLS. One of the largest obstacles we encounter is ... more »
08/26/14
The CdLS Foundation has helped our family in so many ways. They are always available to answer questions and help our doctors, who are mostly unaware of specific CdLS challenges, find answers. We would be lost without the CdLS Foundation... more »
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Spread the word about CdLS and save a child's life in the process, fundraise to help the Foundation provide assistance to families or provide education to healthcare professionals. Volunteer

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