Oops! You must enter a search term greater than 3 characters.

Profile moreless )

Phone: 800.753.2357
302 West Main Street
#100

Avon
Connecticut 06001
USA
Website
2014 Top-rated nonprofits and charities

Please to add this organization to your favorites.

Add to my favorites Added to favorites!

Someone who had 3 hours of volunteer time could: Spread the word about CdLS and save a child's life in the process, fundraise to help the Foundation provide assistance to families or provide education to healthcare professionals.

Geographic areas served: United States

Programs: Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country

Mission:
Reaching Out, Providing Help and Giving Hope.


Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.

Results:

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
40 Reviews
See all »
Average rating:
1234.9755
Write A Review
10/28/14
I've known about the CdLS Foundation since my brother passed away many years ago from complications due to CdLS. I've had the privilege in recent years to serve the Foundation as a Board Member and part of the Research Committee and I am consistently amazed at the ability of the Foundation staff to... more »
10/27/14
I have been working with the foundation since my son was diagnosed 10 years ago. For the past 3 years I have been a board member and love every minute of working with my fellow colleagues and the foundation. They always go above and beyond to help families! Keep up the good work... more »
10/15/14
I have had the privilege of working with the foundation for a number of years and they never fail to go above and beyond in the service of patients with CdLS and their families. The convention is a fantastic educational opportunity as well as a venue to interact with other families and providers ... more »
See all 40 reviews »

Photos & Video


See all »

Support This Nonprofit

3 hours of volunteer time for this nonprofit will...

Spread the word about CdLS and save a child's life in the process, fundraise to help the Foundation provide assistance to families or provide education to healthcare professionals. Volunteer

Promote This Nonprofit

Great Nonprofits badges allow you to raise awareness of your favorite organizations on your own web sites. for text link or graphic badge.

Get badge
By registering you agree to the site's Terms and Conditions.