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Phone: 800.753.2357
302 West Main Street
#100

Avon
Connecticut 06001
USA
Website
2013 Top-rated nonprofits and charities

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Someone who had 3 hours of volunteer time could: Spread the word about CdLS and save a child's life in the process, fundraise to help the Foundation provide assistance to families or provide education to healthcare professionals.

Geographic areas served: United States

Programs: Publications, family service support phone lines, national family conferences, Foundation sponsored family gatherings across the country

Mission:
Reaching Out, Providing Help and Giving Hope.


Cornelia de Lange Syndrome is a little-known genetic birth defect that causes children to develop slowly, both mentally and physically. With the help of hundreds of volunteers, the Foundation is able to provide personal support to every family who requests it.

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30 Reviews
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Average rating:
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08/07/13
We have been part of the CdLS Foundation from it's earliest days. With a tiny newborn in 1977 and no information, we groped our way through each day. When the CdLS Foundation began in 1981 by a group of parents scattered across the country-hope, support, information and advocacy began for us. ... more »
08/06/13
My son was diagnosed with CDLS at birth. The foundation provided me with much needed information and answers to questions that I could not seem to get elsewhere. They helped me connect with other families and to the CDLS clinic in Philadelphia (we live in Florida). Without them I feel I would still ... more »
08/06/13
Our son was diagnosed with CdLS at birth, and within days the foundation had provided us with information and support. He's now nearly two years old, and the foundation has continued to offer information, connections, and assistance with great responsiveness and a real sense of caring. We were ... more »
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Spread the word about CdLS and save a child's life in the process, fundraise to help the Foundation provide assistance to families or provide education to healthcare professionals. Volunteer

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