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P.O. Box 547
Tenafly
New Jersey 07670
USA
Website
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Programs: As the first national group focused specifically on pediatric cardiomyopathy, CCF is involved in all aspects of the disease from research and education to patient support, awareness and advocacy.

CCF's work involves

* Catalyzing research and promoting education
* Advancing treatment models
* Providing leadership and advocacy in the pediatric community
* Offering child and family assistance


More than $1.5 million has been committed to research and treatment initiatives, and CCF has led the way in establishing a biologic specimen repository and planning the first international scientific conference. In the process, CCF has partnered with the National Heart, Lung and Blood Institute, American Heart Association, National Society of Genetic Counselors and the National Organization for Rare Diseases. CCF continues to be an invaluable lifeline to affected families providing information, resources and guidance. CCF’s educational materials are now distributed to more than 70 hospitals in North America.

Mission:
The Children''s Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease that can affect children of all ages regardless of gender, ethnicity or socio-economic background. CCF is dedicated to finding causes and cures for pediatric cardiomyopathy through the support of research, education, awareness and advocacy.
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42 Reviews
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Average rating:
1234.928575
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09/02/14
CCF is an amazing foundation They have helped, provided information, listended and guided when need be Recieving a CM diagnosis is not easy as a parent, and CCF is amazing at supporting, advocating, providing information etc. They are an amazing company... more »
09/02/14
When our son was diagnosed with HCM at 3 months old, we were completely devastated and lost. We felt very alone and of course took to the internet for help. We found CCF and a whole world opened up to us. Not only information but also support groups, doctor lists, people to call for help, and a ... more »
09/02/14
CCF was quick to welcome our family after the diagnosis of our son. We were welcomed to the Facebook family, where we can share our experiences and learn from each other. Our questions and concerns are acknowledged and answered by parents and professionals. I'd highly recommend this group for ... more »
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Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.

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