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P.O. Box 547
Tenafly
New Jersey 07670
USA
Website
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Programs: As the first national group focused specifically on pediatric cardiomyopathy, CCF is involved in all aspects of the disease from research and education to patient support, awareness and advocacy.

CCF's work involves

* Catalyzing research and promoting education
* Advancing treatment models
* Providing leadership and advocacy in the pediatric community
* Offering child and family assistance


More than $1.5 million has been committed to research and treatment initiatives, and CCF has led the way in establishing a biologic specimen repository and planning the first international scientific conference. In the process, CCF has partnered with the National Heart, Lung and Blood Institute, American Heart Association, National Society of Genetic Counselors and the National Organization for Rare Diseases. CCF continues to be an invaluable lifeline to affected families providing information, resources and guidance. CCF’s educational materials are now distributed to more than 70 hospitals in North America.

Mission:
The Children''s Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease that can affect children of all ages regardless of gender, ethnicity or socio-economic background. CCF is dedicated to finding causes and cures for pediatric cardiomyopathy through the support of research, education, awareness and advocacy.
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39 Reviews
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Average rating:
1234.948725
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07/13/13
After our daughter's diagnosis CCF was a great source of information. Our daughter was 3 at diagnosis and we often visit the List Serve for questions and answers. I find both to be a wealth of information. The list serve is a great place to post questions and have real parents answer with their ... more »
07/12/13
I am a pediatric cardiac nurse. My primary role has been to coordinate the care of children affected by cardiomyopathy. CCF is a lifeline for parents and medical providers. Once a child is diagnosed with this rare condition I immediately link them with CCF because I know they will find an ... more »
07/12/13
CCF provides a valuable service to families and the community that is not available elsewhere. It offers opportunities for education and emotional support to families with fragile children who are coping with enormous stress and challenges. Keep up the good work... more »
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Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.

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