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P.O. Box 547
Tenafly
New Jersey 07670
USA
Website
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Programs: As the first national group focused specifically on pediatric cardiomyopathy, CCF is involved in all aspects of the disease from research and education to patient support, awareness and advocacy.

CCF's work involves

* Catalyzing research and promoting education
* Advancing treatment models
* Providing leadership and advocacy in the pediatric community
* Offering child and family assistance


More than $1.5 million has been committed to research and treatment initiatives, and CCF has led the way in establishing a biologic specimen repository and planning the first international scientific conference. In the process, CCF has partnered with the National Heart, Lung and Blood Institute, American Heart Association, National Society of Genetic Counselors and the National Organization for Rare Diseases. CCF continues to be an invaluable lifeline to affected families providing information, resources and guidance. CCF’s educational materials are now distributed to more than 70 hospitals in North America.

Mission:
The Children''s Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic and potentially life-threatening heart disease that can affect children of all ages regardless of gender, ethnicity or socio-economic background. CCF is dedicated to finding causes and cures for pediatric cardiomyopathy through the support of research, education, awareness and advocacy.
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56 Reviews
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Average rating:
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10/11/14
My daughter was born with dilated cardiomyopathy. Heart transplant at Stanford in 2012. Thank you for the awareness you are raising. I am so proud of this non profit. Thanks again... more »
10/10/14
When my daughter was diagnosed with pediatric dilated cardiomyopathy it was an extremely scary time. The next several years were very challenging coming to grips with the fact that DCM has no set course. No one can tell you which course your child will take, whether they will live a life free from... more »
CCF is a great resource and source of strength for families dealing with Pediatric Cardiomyopathy. We are honored to be donors, volunteers and part of the CCF family. CCF will always be there for Cardiomyopathy families in need... more »
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Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.
Latest Photo by Children's Cardiomyopathy Foundation, Inc.

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