Childhood Leukemia Foundation, Inc.

Rating: 4.2 stars   49 reviews

Issues: Human Services, Cancer

Location: 807 Mantoloking Road Ste 100 Brick NJ 08723 USA

Mission: Childhood Leukemia Foundation''s (CLF) goal is to empower and improve the lives of young cancer patients and their families through its various program services. CLF programs include Hope Binders, Hugs U Wear and Wish Baskets. Each program is designed to educate, entertain, raise self-esteem and bring a sense of joy into their challenging lives.
Programs: HOPE BINDERS - The goal of CLF's Hope Binder program is to improve a patient's level of health literacy. Pediatric oncology patients and their families are often overwhemed with the amount of medical and insurance information associated with a chronic illness such as cancer. The Hope Binder has 12 sections to reference and record, in their own words, medical information regarding the child's treatment. The binders also include an assortment of informational booklets regarding pain management and dietary tips, as well as, a 75 minute pre-paid telephone calling card to keep in close contact with friends and family. In 2009, CLF will have distributed over 12,500 Hope Binders to newly diagnosed patients within a network of over 160 hospitals throughout the U.S. A video, created by Cigna Foundation, illustrates the benefits of the Hope Binder for one particular patient and can be viewed on CLF's website www.clf4kids.org.  HUGS U WEAR - CLF's Hugs U Wear program offers human hair wigs to young cancer patients who have lost their own hair due to chemotherapy treatments. The Hug U Wear is a 100% human hair wig that is sewn into a lightweight cap and comes with a detachable hat. The child can choose from several styles to help deal with the stress and embarrassment of hair loss. Hugs U Wear help promote a positive self-image to ease the transition back to "normal life." In 2009, CLF will have provided approximately 3,000 Hugs U Wear to children in need.  WISH BASKETS - Children diagnosed with cancer must endure long hours of boredom awaiting treatment, grueling chemotherapy sessions, and spinal taps. As a result, CLF provides Wish Baskets to help lift the spirits of these young cancer patients during a particularly difficult time in their lives. The baskets are filled with age appropriate items such as pajama bottoms with a matching pillow case, an MP3 player, individual games and a $50 Gift Card to purchase another wish item(s) of their choice. The Wish Basket program replaces CLF's Letters of Hope program and is designed to reach out to many more pediatric oncology patients. In all, CLF has helped to fulfill the wishes of over 9,000 children with cancer.

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Community Reviews

Role: General Member of the Public
Rating: 1 stars  

I have had it. I was In bed with a very critical Lupus flare and the flu and the phone rang. I answered and it was a guy who started out with, "Well hi and said my name". I am wanting to know if you STILL want to donate 25$ again to Childhood Leukemia Foundation? I said, Um,I didn't donate 25$ before. OH he said,I read that wrong, it says 15$. Sorry. I said Sir,I am in bed with a Lupus flare and the flu and I am not interested. I already tithe and give to a group ,so my answer is no. He said, NO? I said yes it is no. He said well I see that you gave before and I would like to just send you a pledge for 15$. I said no and hung up. I brought up the call and called back. Guess what, it is a number that "magically"doesn't work.
After a lot of research today, there is NOT a Childhood Leukemia Foundation in Lansing, Mi. ,which is where the call was placed. Shame on frauds, do they not realize GOD see's every crooked thing they are doing?

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Role: General Member of the Public
Rating: 5 stars  

I am thankful for the Childhood Leukemia Foundation and for the effort they make to help make the lives of children with cancer better. Cancer runs in my family like water. It is no fun for an adult, let alone a child. Long hospital stays can be very boring, let alone the suffering from the disease. I am glad especially for the IPad program, and for the gift baskets. The son of a friend of mine suffered from leukemia for 3 years before he passed away. He died from the disease after his bone marrow transplant. He died with the toy bear in his arms that he received in his gift basket from Childhood Leukemia Foundation. Some donor who doesn't even know the name of this child made a world of difference in his life. Thank you for your support!

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Rating: 1 stars  

3 people found this review helpful

A few months ago I contacted CLF via their website. I was inquiring about how my grandson who was diagnosed with ALL could receive a gift basket. Kate Booth replied that they would information to be able to contact a nurse or someone who works with him to be able to verify diagnosis. After providing the info and making several follow up attempts, they never got back to me!! So much for their mission! It's some kind of scam if you ask me. No sense in contacting them because you will never hear from those people again!

If I had to make changes to this organization, I would...

Close it down

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

When was your last experience with this nonprofit?

2014

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Rating: 1 stars  

2 people found this review helpful

I got a call from 'Rachel' soliciting funds for this organization. She called from a spoofed number that said it was a Private Caller. What kind of organization does that? There is some kind of scam going on- no legitimate charity would use a Private Caller telephone number. I asked to be taken off thier call list- let's see what happens.

If I had to make changes to this organization, I would...

Use a real Caller ID number.

Will you volunteer or donate to this organization?

No

How much of an impact do you think this organization has?

None

When was your last experience with this nonprofit?

2014

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

Hi, We are just writing in to thank you for our son's wish basket and gift card. It could have not came in at a better time for him, his hair began falling and was really sad asking if his hair would grow back any time soon.. Our son Gilbert(Jr) had asked us for a couple of Video Games as this is how he passes time while being home, since he cannot attend school like normal boys and girls do to his weakened immune system. We would like to thank you and all your supporters who support this cause of having a child dealing with a life threatening illness/disease. CLF, sure put a big smile and filled our son Gilbert's little heart with Joy. Thank You So Much!!!! Bless You all!!!!
Respectfully ,
Rocio & Gilbert

If I had to make changes to this organization, I would...

I would love to make sure that all children battling cancer are able to receive the benefits from this wonderful organization

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

My son just received an IPAD from Childhood Leukemia Foundation. It could not have come at a better time. Since he started his treatment, we have not seen one smile...Ugh! When he opened the box and saw the IPAD his face just lit up! As a mother, I am so grateful that others do care about my son. Thank you from the bottom of my heart for all you have done for my family. Sincerely, Rose Garcia

If I had to make changes to this organization, I would...

Pray that they continue to help other families to experience the joy this brought to my son.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

Dear Ms. Barbara,

I just wanted to say thank you so much to you and the Childhood Leukemia Foundation for the Hugs U Wear wig, the Wish Basket, and the Visa gift card. I got my wig and wish basket with the help of Cindy, the social worker at CHOA. I have enjoyed wearing my wig and I always feel pretty when I wear it. It makes me feel like I have hair again. It was also special because I received my wig and wish basket a week after my birthday. I was diagnosed with Severe Aplastic Anemia in 2009 at the age of 7 and in April 2013, I received my bone marrow transplant. Thank you again for sending me these wonderful gifts.

Love, Meredith

If I had to make changes to this organization, I would...

I would not change anything with the organization but would like it if they were able to send a Wish Basket or a Hug to any child who is eligible.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I just wanted to say Thank You so much for the Wish Basket you have my son Mathias. This company has helped to put a smile on my sons face at a time when everything else was in a state of confusion.

My son Mathias is a 11 year old fighting ALL/Philadelphia Plus for the second time.
Mathias was diagnosed on May 2011 and did everything to prepare him for his first transplant (brother donor). He did amazing! 18 months later on February 1, 2013 he had a relapse and our journey started again. He should have been in transplant in April but a day before being admitted they found mass I'm his liver and lung. After two biopsies and waiting it came back as a fungal. Transplant had to be in hold cause to risky to go in with a fungal. We stayed in hospital for three months for treatment. We then were given a two week break to go home (home is 21/2 hours away) and get some family time before our next big journey. Transplant was on August the 15. So far he is doing great. Inclosed is a picture of Mathias at the zoo days before his second transplant, dr gave him permission to enjoy and no limitations!! Zoo is one of his favorite places.
God Bless you CLF!!!

Michelle (Mathias's Mom)

If I had to make changes to this organization, I would...

I would make sure that this foundation is able to give a Wish Basket to any child that requests it. They are a great organization and really care about making a difference to the children

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 1 stars  

10 people found this review helpful

Last year this firm used a telemarketing firm that paid the charity 40% of the monies received - this telemarketer was located on the West Coast. This year they have contracted with a NJ telemarketer (in their home state of NJ, who has a post office box for an address) and their contract is for only 15% of monies collected going to the cause.

The telemarketer will get 85% of all monies collected. This is UNACCEPTABLE!!!

I live in NC and received a call from this telemarketer on 8/12/13 - since I was on the computer I popped up our state's Charitable Solicitations site and looked to see if this was a legit deal, and they had been registered in our state, but their last license had expired in March, 2013 and so far it had not been renewed.

I HATE these "professional solicitators" since they drain SO MUCH MONEY AWAY from a good cause. This may be a great organization, but when you go from a 40% contract to a 15% contract - their board of directors needs to be FIRED and REPLACED with a group of people who still have gray matter between their ears instead of pudding (or possibly poop?)!

I am appalled by the percentages here - telemarketers from India can set up call centers and deluge our country with telemarketing calls made on a shoestring budget using CHEAP VoIP internet phone systems - and yet these "professional Solicitators" claim they can't do it?

Bull - other charities can. There are quite a few that can do it and turn numbers well above 50%.

I obtained these figures from the NC Secretary of State filings PUBLICLY posted on their website - figures provided by the Childhood Leukemia Foundation, Inc. themselves.

Find someone else to donate to until these people get their act together. There is NO reason why the telemarketer's portion should EVER be that high. The board needs to get its priorities straight and remember that they are NOT there to serve themselves and their friends, but to serve those that have cancer and their families - like their mission statement speaks of.

Vote NO CONFIDENCE with your money! Donate elsewhere until this appalling situation is corrected.

If I had to make changes to this organization, I would...

Take the responsibility to do a much better job of vetting my telemarketing firms and NEVER contract with one who provides such a LOW figure for the charity side of the equation. The board should be replaced for acting in such an irresponsible manner. No one with any sense would sign off on such a horrid fee split.

Will you volunteer or donate to this organization?

Unlikely

How much of an impact do you think this organization has?

A little

When was your last experience with this nonprofit?

2013

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Review from Guidestar
Rating: 5 stars  

The Child Life Team at Kaiser Permante, Los Angeles would like to express our gratitude for the kind donation of iPads and laptop we received from your wonderful foundation. We are so excited to utilize this technology with our oncology patients. It has helped us in our daily work with the children at Kaiser.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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