Chiari & Syringomyelia Foundation
Mission:
The Chiari & Syringomyelia Foundation, Inc. (CSF) was established in October 2007 by a group of passionate and dedicated people who are committed to aggressively pursuing a cure for Chiari malformations (CM) and syringomyelia (SM). Our Medical Research Board consists of leaders in neurosurgery, neurology, neuroradiology, genetics, veterinary medicine, and engineering. Our Vision: Within a generation, we will be the preeminent world-wide resource for professional and laypeople seeking accurate and current information about treatments for and best practices surrounding the management of CM and SM. With our unique resources, both financial and intellectual, we will be the leader in driving ongoing programs and research focused on earlier diagnosis and better outcomes for people suffering with these disorders.
Results:
Here are just a few of the items we have accomplished and helped to fund since our inception in 2007:
- research projects involving CM, SM and related disorders
- educational lectures given by medical professionals
- several fundraising efforts including (not limited to): an annual Bobby Jones Golf Tournament in Atlanta, GA, many national unite@night walks, as well as several dinners, dances, etc...
- annual Think Tank of thought leaders across nation
- International Hydrodynamics Symposium
- a new campaign to educate medical professionals about CM, SM and related disorders: "Consider Chiari"
And we have so many more ideas! If you would like to help us out, you can either donate directly or actively volunteer at events such as these by starting a CSF Co-Op: http://csfinfo.org/startco-op
- research projects involving CM, SM and related disorders
- educational lectures given by medical professionals
- several fundraising efforts including (not limited to): an annual Bobby Jones Golf Tournament in Atlanta, GA, many national unite@night walks, as well as several dinners, dances, etc...
- annual Think Tank of thought leaders across nation
- International Hydrodynamics Symposium
- a new campaign to educate medical professionals about CM, SM and related disorders: "Consider Chiari"
And we have so many more ideas! If you would like to help us out, you can either donate directly or actively volunteer at events such as these by starting a CSF Co-Op: http://csfinfo.org/startco-op
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