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Cherubs - The Association Of Congenital Diaphragmatic Hernia Research

Rating: 4.8 stars   176 reviews 8,340

Nonprofit Issues:

Health, Cancer

Address:

3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission:

Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.

Results:

CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons

Target demographics:

families of babies born with Congenital Diaphragmatic Hernia

Geographic areas served:

International

Programs:

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2015 Top-Rated Nonprofit
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More Info

919-610-0129
http://www.cdhsupport.org

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Reviews for Cherubs - The Association Of Congenital Diaphragmatic Hernia Research

Rating: 5 stars   Featured Review

10 people found this review helpful

I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.

If I had to make changes to this organization, I would...

Help the charity to continue to grow to offer even more to the CDH community

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I love CHERUBS and would be lost with out them! It's nice to connect with families that understand what you are going through and who can share their experience. I had never heard of CDH until the day my son was born and the NICU doctor told me he was born with this birth defect. I love that they are taking ACTION raising awareness and funds for more research. CHERUBS has made the scariest times of our life much easier with the volunteers support and love! We will be forever grateful!

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Rating: 5 stars  

Our son was diagnosed with CDH in 2001. Our high risk pregnancy specialist told us to go to the CHERUBS website for "anything CDH related. They will have the most up to date and accurate information." CHERUBS was our guiding light from day 1 and still are. We have connected with families on a personal level because of CHERUBS. We have participated in research studies and felt endless support from the charity. Our lives were forever changed for the better because of CHERUBS and it continues! What a blessing! We have a 13 year old survivor of CDH and we are so grateful for all the love, support and guidance we have had through our CDH journey.

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1 previous review
Rating: 5 stars  

2 people found this review helpful

It will be 12 years ago this coming October that we got the devastating diagnosis of CDH in our unborn child. At our first visit with the high risk pregnancy specialist, he gave us all the information about CDH. We were so completely overwhelmed. At the end if our appointment with him, he said, "when you get home, Google 'CHERUBS', as in angels, cherubs". It was a life changing moment for us when we found CHEUBS. We are so grateful for the up to date information we always get from them and for the outpouring of support we have always felt. We knew we were never alone in the struggles we faced with a survivor of this horrible birth defect. Last year we got to meet Dawn and it was honestly one of the most amazing experiences of our lives. CHERUBS cares about their members and everyone that CDH touches. Our lives are truly blessed by being directed to CHERUBS. I have life long friends that I only know because of CHERUBS. I am so very grateful for this charity and all of the people in it that have so deeply effected our lives. Thank you CHERUBS!

If I had to make changes to this organization, I would...

Do nothing at all! It's absolutely magnificent!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

I gave birth to an undiagnosed cdh child. I felt so alone because I knew no one who had a child with this condition. After I discovered Cherubs, I learned of many people and now have many cdh families for friends! It's nice having people who you can relate to.

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Rating: 5 stars  

Phenomenal organization. Compassionate, educational, supportive, dependable communication. Thank heavens they have been available for us.

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Rating: 5 stars  

The best charity I could have ever come across after my sons diagnosis. They were there before birth, during his life, and after his death. The President, Dawn Williamson and VP, Ashley Berry took the time to meet my son too. I owe them more than I can say!

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Rating: 5 stars  

1 person found this review helpful

When my grandson was born with cdh we were lost. CHERUBS stepped up with information and care that was amazing. It's been 8 years now and we still never feel alone. Their state reps and anyone in the organization is always there to help. We've never felt like we were unwanted or an inconvenience. We've only had wonderful interactions with everyone. Still today we are so impressed with them that we do every thing we can to bring awareness not only to the birth defect but to the organization.

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Rating: 5 stars  

1 person found this review helpful

My daughter is a 28 year old survivor and I wish we had ha CHERUBS when she was born. We were alone in our journey. When she had to have surgery several years ago for a vowel obstruction related to her CDH diagnosis, we found CHERUBS. This is not just a charity. This is a family where there is so much information, compassion, love and prayers for all. My daughter and I now volunteer for CHERUBS. I am just so thankful they are there so no family will ever walk this journey alone again.

When was your last experience with this nonprofit?

2015

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1 previous review
Rating: 5 stars  

1 person found this review helpful

There was no CHERUBS when mydaughterwas born in 1986. We found CHERUBS a few years ago when I was researching adults with CDH. This is when I found CHERUBS. We have learned more since finding other families through CHERUBS than adult family practice doctors ever knew. Thank you all!!!! Love our CHERUBS!!!

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Review from Guidestar
1 previous review
Rating: 5 stars  

5 people found this review helpful

When my daughter was born 26 years ago there was no CHERUBS. You only had your family and friends who were very supportive and loving but it would have been so much better if CHERUBS had been around then. I did not find them until several years ago while doing a search on CDH and its affects on adult survivors. Very little is known about the affect on adult survivors or doctors that know much about the affects on them. We have met so many wonderful families and adult survivors. We have learned more from them than any adult doctor has ever been able to share.

My daughter, Casey and I have been involved with CHERUBS ever since. She is became the Texas State Rep for CHERUBS after a family get together in San Antonio a couple of years ago. Casey would not have become involved had CHERUBS not been the wonderful charity it is.

This has happened all because of the hard work and hard hours Dawn has put into CHERUBS and to recruit so many other hard working volunteers to assist her. I am proud to say I know Dawn, many of the wonderful board members and volunteers working together to make CHERUBS one of the Great Nonprofit Charities today!!! Thank you all for your hard work for us all!!! We love you!!!

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
CHERUBS (Nonprofit Staff) wrote:

Thank you for your review and support of our charity. We hope that you have a great day!

CHERUBS

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Rating: 5 stars  

Cherubs is an amazing group that helps families all around the world. You can connect with families who understand your CDH journey and there is always awareness being raised. Cherubs has made the scariest times of my life easier with the volunteers love and support!

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1 previous review
Rating: 5 stars  

1 person found this review helpful

I was devastated 10 years ago by the CDH diagnosis, 12 weeks pregnant and first baby. I wish I had found Cherubs then. Not knowing what to expect and feelings of being so alone in our babies battle was terrible. But last year when my CDH child was struggling with health issues again and no one would listen I joined a life changing group. I didn't no what to expect but was feeling so scared and alone. After my very first post on Cherubs asking for help and support from strangers, I was totally floored by the compassion and love that I felt. Everyone was always willing to send prayers and support, there was lots of questions I had answered. I know my daughter is reassured knowing she is not alone in her battle and I haven't felt hopeless or alone since I have my CDH family. The amazing awareness and research they provide is priceless. Can't wait to make one of the conferences and meet some of the amazing people who have supported my family.

If I had to make changes to this organization, I would...

Change Nothing

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

My son Aaron was born 15 years ago with CDH. Cherubs has been there for us from the beginning. Through our repairs and recovery in recent years and still there through our hard times as well as our praises! We would be lost without them.

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