CHERUBS - The Association of Congenital Diaphragmatic Hernia Research

Rating: 4.78 stars   161 reviews 1,858

Issues: Health, Cancer

Location: 3650 Rogers Rd #290 var sc_project=9167094; var sc_invisible=1 Wake Forest NC 27587 USA

Mission: Our only mission at CHERUBS is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 4400 CDH families.
Results: CHERUBS 2012 Milestones and Accomplishments: * $20,000 in CDH Research Grants awarded * New Executive Board of Directors * New Parent Advisory Board * New Medical Advisory Board * New Vice-President, Ashley Barry * New Secretary, Lauren Campbell * New Treasurer, Kelly Green-Krist * Senate Bill S.3396 Introduced * Parade of Cherubs on April 19th in Washington DC to Capitol Hill * Members met with the offices of over 25 Senators * April 19th CDH Day of Awareness * Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria * UK Light up The Night on April 19th * First ever Virtual CDH Awareness Parade on April 19th * 2012 CDH Conference in San Francisco * New CHERUBS Web Site * New Facebook Forums Application created * $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes) * Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th * First ever Facebook Grant Contest held by a CDH charity * Over 300 care packages sent to families through our CDH HOPE Totebag project * CDH families represented at the American Pediatric Surgical Association conference * Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs * Texas Get-Together * Ohio Picnic * UK Get-Together in Scotland * Chicago CDH Carnival * Pennsylvania / NJ / Delaware Picnic * Denver Picnic * Indiana Get-Together * Washington Zoo Trip * Oregon members met with Senators * Oregon members represent CDH families at the opening of Randall Children's Hospital * Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research * Over 10,000 Facebook Fans reached * Over 10,000 signatures reached on CDH Research Bill petition * Over 18,000 people reached in one post on Facebook * 2012 Silver Lining Newsletter Published * 2012 CDH Awareness Video * Day of 2012 CDH Awareness Video * Participated in televised Raleigh Christmas Parade * CHERUBS members in Claremont, NC Christmas Parade * CHERUBS members in Snoqualmie Days Parade * It's a Knock-Out UK Fundraiser * Masquerading Angels Ball * UK Formal Ball * CDH Awareness Calendar featuring over 1300 CDH patients * Save the Cherubs CDH Awareness Calendar * First CDH Awareness Calendar in the United Kingdom * Won Shane Co. charity contest * Won the JuJuBelle Facebook contest * Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital * Washington Mud Run Fundraiser * Enter Stage Left Fundraiser * UK Fishing Competition Fundraiser * Rockin' for Aidan Fundraiser * CHERUBS joins Google+, Chirpify, Pinterest, Instagram * CDH Fundraising Kits created * Cooking With Cherubs cookbook project begun * Participated in the San Francisco, Boston and Baltimore Marathons
Target demographics: families of babies born with Congenital Diaphragmatic Hernia
Geographic areas served: International
Programs: var sc_project=9167094; var sc_invisible=1; var sc_security="4a5f7dad"; var scJsHost = (("https:" == document.location.protocol) ? "https://secure." : "http://www."); document.write("");
2014 Top-Rated Nonprofit
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EIN 56-1916661
919-610-0129
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Community Reviews

Rating: 5 stars   Featured Review

8 people found this review helpful

I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.

If I had to make changes to this organization, I would...

Help the charity to continue to grow to offer even more to the CDH community

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

2 people found this review helpful

Absolutely love cherubs!! I joined as soon as I found out my baby had CDH and it prepared me in many ways for his birth. Unfortunately baby Brody didn't make it but I've continued to visit this site for support and everyone is just that... supportive!! I've even decided to volunteer as much as I can. We need to get the word out about this group and CDH in general!!! Thank you CHERUBS for all of the help along the way.

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Review from Guidestar
Rating: 5 stars  

2 people found this review helpful

I became a member of cherubs a few months ago, I love the support and love you receive from everyone in this page, reading other families journeys and knowing that your not alone in this difficult road is a true blessing!!

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Review from Guidestar
Rating: 5 stars  

1 person found this review helpful

My daughter was born with CDH. The doctor had no idea why she couldn't breath on her own, only knew her lungs wern't developed. She passed away 4 and a half hours later. I got home, started researching the symptoms and CDH was the first thing to pop up. The only real indepth page I could find was Cherubs. They were very helpful in helping me to understand what happened. I'm currently wearing the awareness wristband they sent me with the huge amount of documentation they sent me on the condition. I'd have been completely alone if it wern't for them.

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Rating: 5 stars  

1 person found this review helpful

I love CHERUBS. My daughter has CDH and when I found out I was pregnant I immediately started the research. I really had to look no farther than CHERUBS. They sent me my tote and in it was all about what I was getting ready to go through what to expect. I am also part of the forums and this organization has become my new found family. Anytime I have had a question or needed advise, or even just someone to talk to CHERUBS has been there. I do not like CDH but I can say that out of a terrible defect I and my daughter Moriah have gained a new family. This family loves, supports but above all understands what I am going through as a parent and what she will go through as a survivor. Moriah will always be fighting CDH but at least with CHERUBS she will not be fighting alone. GO TEAM MORIAH! GO TEAM CDH! GO TEAM CHERUBS!!!!! Thank you all so much for everything. Our love always, Patricia and Moriah

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Rating: 5 stars  

1 person found this review helpful

I was born with CDH in 1976 and until I came across Cherubs several years ago I did not know much about CDH. Cherubs has been the most caring and personable charity I have come across. I am so happy that families affected today have a place to get the knowledge and support my family did not have access to years ago. Cherubs is amazing charity filled with wonderful people.

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Rating: 5 stars  

1 person found this review helpful

Wish I'd found CHERUBS when my son was here! Great people doing an amazing job simply because it needs done and they love doing it! Everyone has one goal; helping CDH families. Wait; make that two goals. We also want to put CDH on the map, like breast cancer and autism. We want the recognition, the awareness, and the research!

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1 person found this review helpful

There was no CHERUBS when mydaughterwas born in 1986. We found CHERUBS a few years ago when I was researching adults with CDH. This is when I found CHERUBS. We have learned more since finding other families through CHERUBS than adult family practice doctors ever knew. Thank you all!!!! Love our CHERUBS!!!

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Rating: 5 stars  

5 people found this review helpful

When my daughter was born 26 years ago there was no CHERUBS. You only had your family and friends who were very supportive and loving but it would have been so much better if CHERUBS had been around then. I did not find them until several years ago while doing a search on CDH and its affects on adult survivors. Very little is known about the affect on adult survivors or doctors that know much about the affects on them. We have met so many wonderful families and adult survivors. We have learned more from them than any adult doctor has ever been able to share.

My daughter, Casey and I have been involved with CHERUBS ever since. She is became the Texas State Rep for CHERUBS after a family get together in San Antonio a couple of years ago. Casey would not have become involved had CHERUBS not been the wonderful charity it is.

This has happened all because of the hard work and hard hours Dawn has put into CHERUBS and to recruit so many other hard working volunteers to assist her. I am proud to say I know Dawn, many of the wonderful board members and volunteers working together to make CHERUBS one of the Great Nonprofit Charities today!!! Thank you all for your hard work for us all!!! We love you!!!

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How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

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CHERUBS

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Rating: 5 stars  

1 person found this review helpful

My daughter was born with LCDH. I wish I would have found the support then I see now on cherubs. They are amazing! Always bringing awareness and supporting all the family's with positive messages.

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