CENTRAL NERVOUS SYSTEM VASCULITIS FOUNDATION INC

Rating: 1 stars   2 reviews

Issues: Health

Location: Las Vegas NV 89131 USA

Mission: The mission of the Central Nervous System Vasculitis Foundation Inc is to bring to the forefront the need for Education and Research of the rare disease of CNSV, for the patient, as well as the Medical professional, researcher, family member and community at large.

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Community Reviews

Rating: 1 stars  

5 people found this review helpful

The are crooks. close them down close them down close them down close them down close them down close them down

I've personally experienced the results of this organization in...

online communication

When was your last experience with this nonprofit?

2007-11-01

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Review from Guidestar
Rating: 1 stars  

8 people found this review helpful

The Foundation has in charge of the Q & A forum that has zero experience within the health field and is not listed in this organization. She goes by the name "Jill" and clearly should not represent such an important position within the organization. She provides personal stories about her pets. She blocks members access to the Q&A board at her own will. She is not listed on form 990 as required.

I've personally experienced the results of this organization in...

Go down as the years pass.

If I had to make changes to this organization, I would...

Be more open to opinion. Break ground for more volunteers. Many more are willing to help. Seek more ways to gain funds and help distribute these funds to those in need.

What I've enjoyed the most about my experience with this nonprofit is...

Other members.... Treasurer is quite good too...

The kinds of staff and volunteers that I met were...

More concerned about their reputation then the truth

If this organization had 10 million bucks, it could...

Help the lives of many, however the current board members are not experienced for such a task.

Ways to make it better...

The foundation was lead by someone other then Tracey Green

In my opinion, the biggest challenges facing this organization are...

The President Tracey Green and Jill from Q & A (Whispering Angels)

One thing I'd also say is that...

Great foundation idea.... Terrible "management".

When was your last experience with this nonprofit?

2010-3-01

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It seems like you really have a grudge with the Foundation. If it is legitimize file a complaint instead of acting like a JR High school boy who wrote something bad about a girls on the boys bathroom wall because she wouldn't date him.

Review from Guidestar