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Cardio-Facio-Cutaneous International Overview
*Strive to help each other cope with the challenges of raising a child with a rare and often medically involved disorder
*Act as a clearinghouse of information on all aspects of Cardio-Facio-Cutaneous Syndrome
*Publish newsletters, CFC Parents' Guide and host a website
*Educate the general public, medical professionals, and government agencies by disseminating information on CFC Syndrome
*Facilitate research on this very rare syndrome
We spent a lot of time this year pulling together a medical consensus meeting in California. This meeting will result in a publication on levels of care for individuals who are born with CFC syndrome. We will also be updating the parent guide and setting up a chart for care on our website so families can share this print off with their child's physcians.
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Luego de conocerlos me di cuenta lo importante que es la labor que realizan para todas las familias con un chico con CFC. Yo tengo un primito con este sindrome y a el y a su familia le hacen muy bien! Gracias...
CFC is a fantastic non-profit organization that needs all support from us in order to continue doing its important role in Latin America...
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This organization is very helpfull for all CFC families arround the world, we are happy to have found it...
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