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Phone: 607-772-9666
183 Brown Rd
Vestal
New York 13850
USA
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Programs: Bi-Annual International Family Conferences with free medical consults, Private family list serve, Facebook, website with medical information and updates on research, Address Directory so families can locate each other in their region or state, Scientific Symposiums, and Newsletters

Mission:
*Strive to help each other cope with the challenges of raising a child with a rare and often medically involved disorder
*Act as a clearinghouse of information on all aspects of Cardio-Facio-Cutaneous Syndrome
*Publish newsletters, CFC Parents' Guide and host a website
*Educate the general public, medical professionals, and government agencies by disseminating information on CFC Syndrome
*Facilitate research on this very rare syndrome
Results:
We spent a lot of time this year pulling together a medical consensus meeting in California. This meeting will result in a publication on levels of care for individuals who are born with CFC syndrome. We will also be updating the parent guide and setting up a chart for care on our website so families can share this print off with their child's physcians.

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11/27/12
Luego de conocerlos me di cuenta lo importante que es la labor que realizan para todas las familias con un chico con CFC. Yo tengo un primito con este sindrome y a el y a su familia le hacen muy bien! Gracias... more »
11/27/12
CFC is a fantastic non-profit organization that needs all support from us in order to continue doing its important role in Latin America... more »
11/26/12
This organization is very helpfull for all CFC families arround the world, we are happy to have found it... more »
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Latest Photo by Cardio-Facio-Cutaneous International
Latest Photo by Cardio-Facio-Cutaneous International

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