Amyotrophic Lateral Sclerosis Association
Rating: 0 stars 0 0 review 32
2258 Weldon Parkway Saint Louis MO 63146 USA
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.
Patient care services: case management services to approximately 300 individuals diagnosed with als each year in eastern missouri and central and southern illinois. Support services and programs are free of charge. Care service coordinators help family navigate through healthcare system and strive to increase functional independence and improve quality of life for patient and family members. We assess patient / family needs, devise individualized care plans that include home visits, counseling, end of life care planning, grief counseling; we have community partnerships with als multidisciplinary treatment center at st. Louis university and st. Francis als clinic in cape girardeau and work collaboratively with them and durable medical equipment providers, seating / mobility providers, hospice / home health care providers; we provide home modification grants , medical equipment , nutritional supplements, transportation assistance, pt, ot and speech therapies, augmentative communication and assistive technology equipment loan. Due to the disabling nature of als, isolation is common so we also provide community link visiting volunteer program.
education, awareness and advocacy: community education working to stimulate public awareness through advocacy activities on state and national level. We provide an educational institute for health care professionals, monthly patient information updates, printed, video and cd lending library, als educational activity books for children and printed and on line resource manuals for assisted technology, loss and grief, va healthcare, new patient and va benefits. Care connections program to organize efforts of family and friends to provide patient and family additional help, care and support. Through public outreach efforts, media relations, social media and the internet we continually tell our story and the story of those battling this disease to impress upon the importance of our services and continued funding needed for care services and als research.
research: our chapter works with 39 other chapters across the country to support global research and our efforts are focused towards a single vision of a world without als. Our chapter dedicates funds each year directed towards some of the most promising als research projects. These projects are all related to finding the cause, a treatment and a cure and patients are able to enroll in clinical trials. The als association is the only organization dedicated solely to the fight against als. The organization as a whole funds aggressive, cutting edge research using the newest techniques while fostering collaborative initiatives among government agencies, the private sector and scientists who are invested in translational research. Thanks to the als ice bucket challenge we have been able to reinvest in our 3 core service areas; more than doubling the financial support to our certified treatment centers, increased grants for respite care, increased the amount of medical equipment and nutritional supplements that we normally provide.
Filter Reviews by Role
Promote This Nonprofit
GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!
Reviews for Amyotrophic Lateral Sclerosis Association
Get discovered. Invite people to share their experiences about this nonprofit!