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Amyloidosis Support Group, Inc. Overview
Face to face support and a helpful voice to guide people with this rare disease, with education and awareness of resources and treatment centers.
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Muriel is a godsend to those of us who are diagnosed and provides an invaluable ongoing service and is the center of a large community of support, knowledge exchange and care...
On Oct 17, 2012, my wife got diagnosed with AL Amyloidosis. It was a frantic time because of all the scary info on the web about the severity and general hopelessness of the disease. We got treated by a Multiple Myeloma Dr because we were told that was our best option.
While researching my wife ...
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My husband passed away of amyloidosis in 2004. At that time, not much was known about amyloidosis. I know it is not unusual today to hear the same about amyloidosis, but with Amyloidosis Support Groups networking with hospitals in the field of amyloidosis, having support groups in hospitals, ...
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