AmeriFace

Rating: 4.95 stars   44 reviews

Issues: Health, Human Services

Location: PO Box 751112 Las Vegas NV 89136 USA

Mission: We support individuals whose facial differences are present at birth, such as cleft lip and palate, Apert, Crouzon, Treacher Collins and Moebius syndromes, vascular malformations, as well as other conditions. We also serve those who have acquired facial differences as a result of illness, disease or trauma, such as stroke, cancer, accident and fire.
Geographic areas served: United States and Internationally
Programs: cleftAdvocate Family-to-Family Connection Pathfinder Outreach Network (serving all conditions) Goldenhar Syndrome Support Network Crouzon Support Network Treacher Collins Syndrome Support Network North American Craniofacial Family Conference

2014 Top-Rated Nonprofit
Write a Review

See How $25 Can Help

See How 3Hrs Can Help

Invite people to share their experience with this nonprofit!

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Community Reviews

Rating: 5 stars  

I've been a client, parent advocate and volunteer for 12.5 years, since the beginning when Cleft Advocate first formed. Debbie had just begun forming the organization, and I've been served as a parent of a child with a craniofacial difference and I've been a volunteer.

I would do it again in a heartbeat if I had to. This organization has done so much over the years. Hope it keeps on ticking for the next 12 yrs and more more to come.

If I had to make changes to this organization, I would...

An actual office for the organization head. I'm sure she could utitlize it in so many ways. It would be more than beneficial for her.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

Have been part of this group since 2002 when our son was born. Wouldn't trade it for the world. AmeriFace and it's programs are an absolute great resource for families and individuals with craniofacial differences. Always glad to participate when I'm able.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
1 previous review
Rating: 5 stars  

I've been a member of cleft Advocate since right around it's institution in it's early days. And Debbie is a wonderful advocate and parent. I haven't been involved in recent years, due to my chaotic lifestyle, but her website stil is and always has been the lead GOTO for information on anything craniofacial affiliated and information. I call her the "cA Guru" I have a local group (via phone and email connections only) that we meet once a month or so locally, for play dates, or just to connect when someone needs help. And she was the inspiration behind that networking. And I refer them all to her website: www.ameriface.org.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

I ended up volunteering with AmeriFace because I fell in love with the people. I can't imagine going though my son's childhood without their support. cleftAdvocate was brand spanking new when I first stumbled on them, and they were a lifeline, a source of comfort, and a place of sanity. I honestly don't know what I would have done without them and am so glad I found them when my son was only a few months old. 12 years later, I love them just as much and I can't imagine my life without them.

If I had to make changes to this organization, I would...

Give them more funding and offices so they could do even more. I wish I could give them the world.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

I have been a member of this wonderful network of the most loving, caring, giving people for almost 10 years. I have to say that I couldn't have gone through some of the stuff I am reliving with my son without their loving support. When I first chatted with the founder on the phone it was amazing so touching to have an understanding person there to listen to me. I cannot say enough wonderful things about cA I love this community so much.

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

I have been with this organization for about 8 years. It's got me eally tough times, celebrated good times and supported me through the whole roller coster. I will forever be greatful to have been given the privilage to meet so many of the families in person and to have gained lifelong friends. I constantly refer many to this network of friends for support, love questions. hope to meet some of you reading this real soon!

A. Kakiuchi (unilateral cleft lip) a proud mom to 8 yr old twins and a 5 yr old singleton (son born with a bilateral cleft lip and palate)

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Was this review helpful? 
1 previous review
Rating: 5 stars  

I'm so happy to know about this non profit and every opportunity I get I tell others who could benefit from it. It has made all the difference in my life and helped me through tough times. I know many people who the group has had a life changing impact. I have made life long friends.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The cleftAdvocate Facebook page is an amazing resource for parents/families in the cleft community. I have never seen such a supportive group of people who are all so eager to give advise, share testimonies, and celebrate progress as this group is. As a young adult with a cleft, I'm aware that one day I might have a child with a cleft myself, and it is very encouraging to see these resources out there!

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

Ameriface has been with my family since my son was a year old. They have been with us for good and the bad. I have also been able to help others due to this organization. I have become friends with many of the families and we have been able to watch our kids grow and become happy healthy teens.

If I had to make changes to this organization, I would...

I don't think the changes need to be made. Debbie has spent so much time making sure it is what everyone needs not just some of us.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
1 previous review
Rating: 5 stars  

Cleft Advocate and Ameriface were not around when my son was born. However, a year later it was. It was a great way for me to learn more about how to care for my son but also to help others who were stepping into my shoes.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful? 
Rating: 5 stars  

The sense of community that they bring to the families affected by Cleft, is invaluable. There can't be enough education for the public and families outside of just the medical perspective.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

When our son was born with a cleft lip and cleft palate we didn't know what that meant, so beyond the shock of this when he was born, we started our research almost 9 years ago when the internet was just blooming. No wi-fi, all dial in, and we found AmeriFace and Cleft Advocate. They mailed us literature, and at that time a VCR tape, insert smiley, and talked with me on the phone to educate me on what a cleft was and what we needed to do.
Here we are 9 years later with a healthy active baseball player, four surgeries post, and very blessed to have organizations like this. I have referred many families to them, and support them financially when we can.

If I had to make changes to this organization, I would...

Have the organization more visible in hospitals, OB offices, and physicians offices to let people know about this birth defect and educate people on what it means to have this facial difference.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

I found CleftAdvocate shortly after my daughter was born 11 years ago with a cleft palate. I didn't know what to do or where to turn to for help. They were truly a beacon of light shining through the darkness of my despair when we just couldn't figure out how to feed our baby. The information and support I received from CleftAdvocate were life changing for me, my daughter and our whole family. I can't thank them enough and only hope that my story can help someone else as much as CleftAdvocate helped me.

If I had to make changes to this organization, I would...

not change a thing.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

When your family recieves a cleft diagnosis, it can be overwhelming-at least it was for us. Finding reliable information is a godsend as we soon learn that cleft, though challenging, is navigatable. We watched the cleft feeding video over and over before our little one was born so we would have the confidence to feed her. Aside from needed support in the early stages this organization helps you as your child grows. Often kids need dental, speech, hearing and psychosocial support, not to mention help with health insurance. Ameriface helped me know what questions to ask doctors. Through the group, I have met adults with cleft. It is an awesome organization that makes a difference.

If I had to make changes to this organization, I would...

Grow it's curriculum to help speech therapist address cleft specific problems and have more resources for mom's who exclusively pump- a 1800 lactation specialist to call would rock.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful? 
Rating: 5 stars  

The information found on the ameriFace/CleftAdvocate website, Facebook page, via its members, and by Debbie Oliver was paramount in helping us get insurance coverage for our daughter's most recent surgery. Not only were we welcomed with open arms, but we were overwhelmed by the vast amount of knowledge, support, and genuine care and concern offered. Thanks for such an amazing resource for families with children with facial differences. We couldn't have done it without you.

If I had to make changes to this organization, I would...

More user friendly, visibly appealing website.....seems a bit dated in comparison to others.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

Was this review helpful?