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PO Box 751112
Las Vegas
Nevada 89136
USA
Website

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Someone who had 3 hours of volunteer time could: Assist on-line or by telephone providing support and resources to patients and families; distribute feeding and outreach information locally/regionally; assist staff with administrative duties and/or fundraising.

Geographic areas served: United States and Internationally

Programs: cleftAdvocate
Family-to-Family Connection
Pathfinder Outreach Network (serving all conditions)
Goldenhar Syndrome Support Network
Crouzon Support Network
Treacher Collins Syndrome Support Network
North American Craniofacial Family Conference

Mission:
We support individuals whose facial differences are present at birth, such as cleft lip and palate, Apert, Crouzon, Treacher Collins and Moebius syndromes, vascular malformations, as well as other conditions. We also serve those who have acquired facial differences as a result of illness, disease or trauma, such as stroke, cancer, accident and fire.
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29 Reviews
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Average rating:
1234.931035
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10/10/13
I have felt so fortunate to have such wonderful people that I could get support from and ask questions .If not for this group I do not know what I would have done because there is no one in my area that could have given me the support and advice that I have recived I feel very bless to have come ... more »
10/10/13
I have been with this organization for about 8 years. It's got me eally tough times, celebrated good times and supported me through the whole roller coster. I will forever be greatful to have been given the privilage to meet so many of the families in person and to have gained lifelong friends. I... more »
10/07/13
My name is Kerri and I am the mother to an amazing daughter named Ella. Ella is now 8 and healing from a bone graft surgery which is her third surgery this year alone. She was born with a unilateral cleft lip and palate. She was our surprise in the delivery room because it was undected through an ... more »
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Assist on-line or by telephone providing support and resources to patients and families; distribute feeding and outreach information locally/regionally; assist staff with administrative duties and/or fundraising. Volunteer

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