Over 1.8 million nonprofits and charities for donors, volunteers and funders

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Nonprofit Overview

Causes: Health, Human Services, Nerve, Muscle & Bone Diseases

Mission: APDA was founded in 1961 to "Ease the Burden and Find the Cure" for Parkinson's through research, patient and family support and education.

Programs: Public and professional education - to educate the public and medical profession with programs for the benefit of parkinsonians and their families. Approximately 76,411 newsletters are mailed annually.

information and referral services - to promote awareness of and provide information to persons suffering from parkinson's disease. 32 information and referral centers funded.

research centers - to foster and promote research for the cure and alleviation of the condition of persons suffering from parkinson's disease. Seven advanced centers were funded. Two summer fellowships were funded.

Community Stories

7 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

I was diagnosed with Parkinson Disease on September 11, 2008. I immediately was notified of APDA by my Neurologist, and I started right away to benefit by the organization. APDA provided me with more than enough literature educating me about the disease, and giving me suggestions on how I could cope with the disease. APDA has several local support groups in the St. Louis area, and I have attended a weekly exercise program offered free of charge by APDA. The support group also meets once a month, and when possible a medically trained professional will speak to us about Parkinson Disease and what we can do to live with the disease. Luncheons and banquets are provided free of charge at various times during the year, and once or twice during the year a PD specialist will speak to us at a forum.

Review from Guidestar

Volunteer

Rating: 5

We are support groups leaders for two support groups in MO. We could not do it without APDA St. Louis. We regularly refer members to the resource/information center for guidance and resources to deal with this destructive disease. The national nature of the organization gives us assurance that wherever we go we can count on help when we need it.

Patsy Dalton

Review from Guidestar

Professional with expertise in this field

Rating: 5

The APDA has been most helpful to myself and my family when my father was diagnosed with Parkinson's disease. They provide literature, programs and emotional support in dealing with a complicated illness. I was impressed enough with the organization to become a part of it and facilitate one of their support group, and have been for 13 years.

Review from Guidestar

Professional with expertise in this field

Rating: 5

I have seen first-hand the impact this organization has had on people living with Parkinson's. I've talked with patients who have directly benefitted from their exercise classes, support groups and referral services. The amount of literature and knowledge on the disease at the chapters is astounding. I would definitely encourage anyone who is diagnosed with Parkinson's to contact one of their local chapters and take advantage of their services. If you have the means, it's definitely worth giving to this cause.

Review from Guidestar

1

General Member of the Public

Rating: 5

APDA has amazing free educational publications. I have been very impressed with their Center for Advanced Research. The people are so caring and helpful. They will even help you find a physical therapist or caregiver. It is a fantastic organization!!

Review from Guidestar

1

Client Served

Rating: 4

I found APDA to be most helpful in answering my questions about my disease, in aiding me to find doctors and with the programs offered to aid me in keeping mobile, alert and functional. The personnel at the Center for Advanced Research at the University of Virginia has been especially knowledgeable, sympathetic and beneficial.

4

Professional with expertise in this field

Rating: 1

Poorly lead national leadership. Local chapters are independently run and are led by competent local leaders. Unfortunately, the local chapters are required to provide "tribute" of 80% of their fundraising donations to the national office. What do local chapters receive in return? A slowly degenerating nationally recognized name without leadership. The Board and national office requires a shake-up. (Comments reflect national organization based in Staten Island).

Review from CharityNavigator